Knowledge

We share knowledge about coarctation and its treatment.

Connection

We are community of those who have been affected by coarctation.

Research

We foster research towards understanding coarctation.

Awareness

We work towards improving the awareness of coarctation to foster a better understanding of the disease and to improve its treatment.

We support children, adults and families who have been affected by the congenital heart condition called Coarctation of the Aorta

Education

We educate and inform each other to ensure consistent, high quality care.
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Advocacy

We strive to be the model for other congenital diseases, including heart disease, for patient and family involvement and advocacy.

Research

We support research efforts to improve coarctation diagnosis and treatment.

International Care

We support the efforts of physicians to provide care to patients of countries that wouldn’t have access to coarctation repair.

If you have a new diagnosis of coarctation

We have put together some resources to help you understand your diagnosis and find other people who can help you choose your treatment options. These resources are not meant to provide medical advice, but to help you understand and appreciate the medical advice provided by your physician. Click below to learn more.