Welcome to the new website of the Coarctation of the Aorta Foundation. We are very excited about our new website which will become the focus of our mission to connect children, adults and families who have been affected by the congenital heart condition called Coarctation of the Aorta. Our efforts and this site will focus on four key areas:

  1. Educating and informing patients and families to ensure consistent, high quality care.
  2. Being the model for other congenital diseases including heart disease with regard to patient and family involvement and advocacy.
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  4. Supporting research efforts to improve coarctation diagnosis and treatment.
  5. Supporting the efforts of physicians to provide care to patients of countries that wouldn’t have access to coarctation repair.

Because coarctation is considered to be a “moderate” heart defect there has been less advocacy and patient awareness of long-term follow-up and outcomes. We want to ensure that all COA survivors have long and healthy life. We look forward to the participation of the coarctation of the aorta community in helping us achieve our goals for the new year.